Woman who had cancer thought she was going to die after NHS error (2024)

  • Shell, from Essex, first gotdiagnosed with non-Hodgkin lymphoma in 2019
  • READ MORE:Number of cancer patients waiting twice as long as they should to start cancer treatment has doubled since 2020

By Gina Kalsi For Mailonline

Published: | Updated:

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A woman who has battled cancer four times was led to think that she was going to die after receiving an old letter from the NHS telling her she had relapsed.

Shell Rowe, fromBillericay, Essex,was first diagnosed with non-Hodgkin lymphoma in 2019 just after finding out she'd been accepted at university in California to study filmmaking - her dream career.

The 24-year-old went on to be diagnosed with the disease three more times, and has undergone chemotherapy,CAR T-cell therapy and a stem cell transplant.

She has been in remission for more than two years, but got a fright when she was sent an outdated note from University College Hospitals London telling her that her cancer had come back.

Speaking to her 123,000 followers, Shell said: 'Who at the NHS hates my guts then? Because I'm getting the feeling that someone is taking a life insurance policy out on my life and trying to give me a heart attack with this letter.

Shell Rowe, from Billericay, Essex, thought she was going to die after getting an old letter from the NHS

Award-winning podcast host and cancer campaigner Lauren Mahon was photographed with Shell Rowe for aMacmillanfundraiser

'I would have rather received goat s*** in the post than what they've sent me. Knowing I've had cancer four b****** times, why would you use this sentence: 'It's been identified that this patient has had subsequent disease relapse'.

'Sorry, why are you telling me that I'm going to die in the post?'

Shell said the letter was from three years ago, when she last relapsed and said she only knew this because it spoke about CAR T-cell therapy, something she had gone through at the time.

She said: 'They've sent me a letter that is three years late about the last time I relapsed as I wait on new MRI results.

'When I tell you my entire soul blew out of my a******. What a way to s*** in my Weetabix this morning.'

She captioned the video: 'My life flashed before my eyes with this letter from the hospital.'

Shell has documented the highs and lows of her cancer journey online and has worked with theTeenage Cancer Trust and Macmillan.

She took part in a campaign called 'Anything But Hair', showcasing 'hairless hairstyles' in a bid to raise funds and spread positivity around hair loss.

Her followers rushed to the comments to express their thoughts on the video, with some saying that the same thing happened to them for relatives who passed away from cancer.

One wrote: 'After my mum passed away we received a letter addressed to her with the NHS on the envelope from the exact hospital she passed away in. I wish I was making it up.'

Shell said the letter was from three years ago, when she last relapsed and said she only knew this because it spoke about CAR T-cell therapy, something she had gone through at the time

Her followers rushed to the comments to express their thoughts on the video, with some saying that the same thing happened to them for relatives who passed away from cancer

Another responded and said: 'They did this with my dad, he passed away in hospital almost three years ago and I got post from the hospital about appointments and I phoned up and screamed at the doctors because I was grieving and obviously they don't know how to inform the other places in the hospital that patient has died.

'I have since started working in that same hospital and it's ridiculous how they're still doing it.'

A third penned: 'Good old NHS!!! Still waiting for an emergency scan from 15 years ago.'

A fourth commented: 'My uncle still receives post for my aunt who passed away from cancer telling her it's time for her cervical check. For a bunch of doctors sometimes basic empathy is forgotten.'

A UCLH spokesperson said: 'We have called Shell to apologise for the distress caused by this letter.This was a copy of a new letter, written this month and sent to her GP, which included a summary of her clinical history. We understand how this has been misinterpreted.'

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Woman who had cancer thought she was going to die after NHS error (2024)

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Someone with a terminal illness may live for days, weeks, months or years. It often depends on their diagnosis and any treatment they are having.

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How do doctors determine how long you have to live? What we know about a prognosis for a patient with any medical disease or disorder is largely based on those who came before them. What you're really looking at is the risk of the population—that is, how long anyone else with the same disease survived.

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Terminal cancer is the final stage of cancer, which is why it also described as “end-stage cancer.” The disease continues to grow and spread advanced cancer from which recovery is not expected.

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We use the term terminal when a condition, such as cancer, is incurable and will lead to a person's death. We may also refer to this as end-stage cancer.

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Some people don't have pain. But if a person is in pain, it can usually be well controlled, and people can be kept very comfortable. The doctors and nurses looking after the dying person will do all they can. Sometimes restlessness is a sign of being in pain.

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People with stage 4 cancer often live many years after diagnosis, which is why it's more accurate to describe it as "advanced" or "late-stage."

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Signs of cancer with the lowest cancer survival rate

So far, pancreatic cancer is still the most feared cancer because of its very high mortality rate. The pancreas is an organ that plays an important role in the body, specifically in the process of digesting food.

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5 things they don't tell you about life after cancer
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Jul 20, 2023

Which cancer is incurable? ›

1. Pancreatic cancer. 2. Liver cancer and intrahepatic bile duct cancer.

Can you have stage 4 cancer and not know? ›

A person may not experience any symptoms of stage 4 cancer. However, if symptoms are present, they can differ depending on where the cancer has spread. For example: Spread to the bone: A person may experience fractures and bone pain.

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Stage 4 cancer usually has spread to multiple places in the body, meaning you can live only a few weeks or a few months. In rare cases, some people may survive for several months or even a year with stage 4 cancer, with or without treatment.

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Pancreatic cancer is aggressive. It often kills quickly and causes painful symptoms like: Stomach pain.

Has anyone ever beat terminal cancer? ›

David Sugarbaker. Through the surgery, 3 rounds of chemotherapy, and now monthly immunotherapy infusions of Keytruda (pembrolizumab), I'm proud to say I've beaten the odds, and recently celebrated 7 years as a mesothelioma survivor.

What happens in the last 6 months of cancer? ›

Worsening weakness and exhaustion. A need to sleep much of the time, often spending most of the day in bed or resting. Weight loss and/or muscle loss as part of cachexia. Little or no appetite and difficulty eating or swallowing fluids.

Can you live a full life with terminal cancer? ›

Generally, terminal cancer shortens someone's life expectancy. But someone's actual life expectancy depends on several factors, including: the type of cancer they have. their overall health.

How long does terminal cancer mean? ›

When cancer is advanced, it means that it can't be cured. Doctors might also say that the illness is terminal. This means that it is likely to cause death within a limited period. How long is difficult to predict, but it could be weeks to several months.

How do cancer patients know the end is near? ›

Though it is not always possible to predict how long someone will live, these are the common signs and symptoms that suggest a person with cancer may be entering the final weeks of life: Worsening weakness and exhaustion. A need to sleep much of the time, often spending most of the day in bed or resting.

How long does terminal stage last? ›

Depending on the nature of the illness and your loved one's circ*mstances, this final stage period may last from a matter of weeks or months to several years. During this time, palliative care measures can help to control pain and other symptoms, such as constipation, nausea, or shortness of breath.

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